Exciting news! – Ali Harper and The Hydranencephaly Foundation is in the middle of organizing a very special project which will connect Bee families from all corners of the globe together. This will be the second family event that Ali Harper has organized since starting the GHF (Global Hydranencephaly Foundation). The previous event was in 2013 and it was a HUGE success.
This event is the perfect opportunity to meet up with other Hydranencephaly families who until now have only been connected online through Facebook. Finally meeting in person after years of friendship and unprecedented support is a truly exciting, emotional experience for all involved.
The “Just Bee” retreat will be taking place between Thursday, June 22nd and Sunday, June 25th at the amazing Seabeck Conference Centre, in Seabeck, Washington State. This beautiful laid back venue which resembles a small village is the perfect setting to escape the pressures of daily life. It is engulfed within 90 acres of some of the most beautiful scenery that WA has to offer, and has views of the Hood Canal and the Olympic Mountains. Needless to say that it is mostly wheelchair accessible and the perfect venue for Hydranencephaly children and their families. There is even a special accessible Treehouse that will be sure to put a smile on our little Bee’s faces!
The event will include 3 nights of lodging, full access to the whole property, all meals, full kitchen access, coffee/tea service, and if you need anything else then Ali and her team will be right there for you. There will also be daily activities and a whole host of local individuals onboard to assist with the event’s success. Keep up to date with the details on the GHF Facebook event page!
Prices and booking forms can be found on the GHF website.
Not only has Ali and the GHF organized this once in a lifetime event; they are also in the middle of fundraising and doing all they can to provide support and guidance for fundraising to achieve your travel and attendance goals.
Their efforts will help to make this an enjoyable and realistic opportunity for all. The funds raised will help to bring families from afar who wouldn’t otherwise be able to afford it.
- Children with Hydranencephaly will get a ‘free-BEE’ ticket for the whole 4 days!
- Two for the price of One!! – Families of Angels will receive one ‘free-BEE’ ticket with the purchase of another ticket!
- Funding will be given for travel expenses.*
- Help will be given to cover for lost work days.*
- If funding is the only thing that is holding a family up, then GHF and it’s partner sponsors will do everything in its power to help with giving grants to as many families as they can.*
If you can’t make it to the event yourself then maybe you could consider helping one of the Hydranencephaly families to get there instead. Donations are gratefully accepted and can be made tax free through The Global Hydranencephaly Paypal account. If you have any fundraising ideas we’d love to hear from you. Please leave a comment down below.
Personally, I am a looking forward to seeing pictures of the event and maybe even a live webcam or Facetime (Ali??) as I live in Israel and won’t be able to make such a long trip with Natan Shai. But wishing all of my Hydran family a wonderful vacation and hoping it will BEE lots of fun!
With Much Love,
Hannah (Natan Shai’s Mom)
*GHF are doing all they can to provide support and guidance. They are however under no obligation to provide monetary help but will do whatever they can with the resources available.