Hydranencephaly Resources

Here you can find a list of useful and interesting sites or pages connected with Hydranencephaly.  If you have any suggestions to add to this list which would help other parents, please leave a comment below or contact me in the contact section at the footer of this site.  Thank You!hydranencephaly resources

Hydranencephaly Organizations:

www.hydranencephalyfoundation.org (Global Hydranencephaly Foundation)

www.hydranencephaly.com (Rays of Sunshine)


Personal Websites (About children with Hydranencephaly):


Facebook Links:

www.facebook.com/globalHYDRANENCEPHALYfoundation (Main GHF Facebook Page)

www.facebook.com/groups/hydran.families (Closed/Private Facebook Page)

www.facebook.com/groups/hydranchitchat (Closed’/Private Facebook Page)

www.facebook.com/groups/215174251852482/ (Rays of Sunshine Facebook Page)

www.facebook.com/JadensJourneyWithHydranencephaly/  (Jaden’s Journey With Hydranencephaly)

www.facebook.com/natanshai/  (Friends of Natan Shai’s Facebook Page)


www.hydranencephalyfoundation.org/tribute.html  (Tribute to Brayden Alexander Harper)

www.facebook.com/groups/583592771685143/ (Tribute To Breanna)