General Information

medical cannabis research 2
We recently received the greatest news………. after a long time learning everything we could about medical cannabis (or medical marijuana as it is also referred to), Natan Shai whose medical diagnosis is Hydranencephaly and Cerebral Palsy among other things, has been accepted to enter a seven-month research program which aims to […]

Medical Cannabis Research For Spasticity – Natan Shai’s Journey

GUEST POST BY JOLENE PREGENT – This guest blog post is about ‘doTERRA’ essential oils and how their benefits can help your child with Hydranencephaly.  As many of you know, the struggles of raising a child with hydranencephaly are many.  I have found a few ‘doTERRA’ essential oil products to […]

How Can doTERRA Essential Oils Help Your Hydranencephaly Child?

water way babies
GUEST POST BY NANCY HIGGS – A warm water environment is a place of freedom, independence, and stimulation for a child with limitations. It is an equalizer of sorts. Paediatric aquatic therapy is a growing field. Physical therapists (physios in certain countries), occupational therapists, and speech therapists may choose […]

Water Way Babies – Simple, Affordable and Amazing!

the global hydranencephaly foundation
The Global Hydranencephaly Foundation was founded by the amazing Alicia Harper in 2013 (Mother to <a href="http://www Extra”>Brayden Alexander Harper).  Instead of letting her sons diagnosis and attached prognosis defeat her and her family, she faced it head on and chose to defy the common misconceptions associated with Hydranencephaly. […]

What Is The Global Hydranencephaly Foundation?

what is the difference between hydrocephalus and hydranencephaly? 2
Understandably many people are not aware of the differences between Hydranencephaly and Hydrocephalus.  To be honest with you, when we first got Natan Shai I didn’t know the difference either, especially because he was diagnosed as having Hydranencephaly AND Hydrocephalus – I just presumed they were almost the same thing. […]

What Is The Difference Between Hydranencephaly and Hydrocephalus?

hydranencephaly images
O.K. so if you’re looking for Hydranencephaly images I can bet that you are either a doctor doing your research or you have probably just been told that your baby or a baby of a loved one has been diagnosed with this condition.  You may even be a little apprehensive as […]

Hydranencephaly Images