General Information

Every one of us wants our children to grow and thrive. In encouraging this growth, the key is to focus on strengths and gifts, developing natural talents and giving children positive experiences that encourage them to broaden their comfort zone. Music Therapy has many proven benefits that make it especially […]

10 Benefits of Music Therapy for Special Needs Children

15 Mar, 2018 in General Information by Hannah Levi

emergency preparedness with special needs children — Well, I don’t know about you but with the latest natural disasters going on around the world I have started to think seriously about being prepared in the event of an emergency. I think we should all be prepared as best as we can anyway, but emergency preparedness with special […]

Emergency Preparedness With Special Needs Children

28 Sep, 2017 in General Information tagged emergency preparedness by Hannah Levi

hydranencephalylifeexpectancy — If your child has been diagnosed with Hydranencephaly you are probably in a state of shock and confusion and are looking for as much information as you can on the subject, as well as support. One of your biggest questions is going to understandably be “What is Hydranencephaly life expectancy?” […]

What Is Hydranencephaly Life Expectancy?

25 Sep, 2017 in General Information tagged hydranencephaly / life expectancy by Hannah Levi

medical cannabis research — We recently received the greatest news………. after a long time learning everything we could about medical cannabis (or medical marijuana as it is also referred to), Natan Shai whose medical diagnosis is Hydranencephaly and Cerebral Palsy among other things, has been accepted to enter a seven-month research program which aims to […]

Medical Cannabis Research For Spasticity – Natan Shai’s Journey

30 Jul, 2017 in Cerebral Palsy / General Information / Natural Remedies / News tagged medical cannabis / medical marijuana by Hannah Levi

Animal Therapy For Special Needs — Natan Shai loves his animal therapy at school and also our pet dog at home, so I decided to write an article about animal therapy for special needs and how it can help our kids in so many different ways. It is actually quite a simple kind of therapy as you […]

Animal Therapy For Special Needs Kids

24 May, 2017 in General Information tagged animal therapy by Hannah Levi

OK, so I have to tell you a story today that happened to me during this past week. If you are a special needs parent then I’m sure you can relate to this. And if not then I believe that you’ll enjoy reading anyway so keep going 🙂 You see, […]

Incompatible With Life? Oh Really?

7 May, 2017 in General Information tagged hydranencephaly / incompatible with life by Hannah Levi

cerebral palsy child — If you have a child with Cerebral Palsy (or know somebody with C.P.) then you are probably wondering what are the causes of Cerebral Palsy. The main cause of cerebral palsy today is brain damage due to prematurity. Infants born in the 24-34 week gestation period have a high incidence […]

What Are The Causes Of Cerebral Palsy?

29 Mar, 2017 in General Information tagged C.P. / cerebral palsy by Hannah Levi

Trip To Holland Poem — The trip to Holland poem for me just summed it all up…….. When you first find out that you are expecting (or have given birth) to a special needs child it is obviously a huge shock. It is nothing any of us expected. Even when we ourselves became foster parents […]

Trip To Holland Poem – By Emily Perl Kingsley

28 Mar, 2017 in General Information tagged trip to holland poem / welcome to holland poem by Hannah Levi

GUEST POST BY HEIDI THOMPSON – (www.heidis-place.blogspot.com) Today we are priviliged to publish a guest post from Heidi Thompson about her experience with EagleEyes Controlled Technology and how it helps Junior to communicate. Junior is one of Natan Shai’s first friends who we met online and it has been exciting […]

EagleEyes Controlled Technology – Unbelievable!

24 Mar, 2017 in General Information / Guest Posts tagged Communication / EagleEyes / Technology by Hannah Levi

wheel chair costumes for kids — O.K. so tomorrow it will be Purim, (in other words, Mardi Gras for Jews). In recent years I’ve enjoyed going out on a limb to find an original costume for Natan Shai and I’ve had so much fun doing it. Actually, the whole family gets involved and it becomes a real […]

Wheelchair Costumes For Kids – Just Wow!!

11 Mar, 2017 in General Information / News by Hannah Levi

Well, I don’t about your kids, but Natan Shai LOVES doing all different kinds of artwork. He enjoys the sensory part of touching the various mediums (wet, dry, sticky) and greatly enjoys coming home from school with his hands dirty and an iPad full of pictures of what he has […]

Arts And Special Needs – All Without A Brain!?!?!

2 Mar, 2017 in General Information tagged art / therapy by Hannah Levi

GUEST POST BY JOLENE PREGENT – www.mydoterra.com/wellnesswithaquarity This guest blog post is about ‘doTERRA’ essential oils and how their benefits can help your child with Hydranencephaly. As many of you know, the struggles of raising a child with hydranencephaly are many. I have found a few ‘doTERRA’ essential oil products to […]

How Can doTERRA Essential Oils Help Your Hydranencephaly Child?

22 Feb, 2017 in General Information / Guest Posts / Natural Remedies / Reviews tagged doTerra / essential oils by Hannah Levi

Hydranencephaly — Guest Post By Lisa King (www.lisajking.blogspot.com) Over sixteen years ago my husband Aaron and I were told that our second eldest son Noah had hydranencephaly. We were told he had severe brain damage, he would never respond to us, he would rely on us for everything, he was blind and […]

Noah’s Story – Don’t Count The Days, Make The Days ...

13 Feb, 2017 in General Information / Guest Posts tagged hydranencephaly / lisa king / noah king by Hannah Levi

water way babies — GUEST POST BY NANCY HIGGS – www.waterwaybabies.com A warm water environment is a place of freedom, independence, and stimulation for a child with limitations. It is an equalizer of sorts. Paediatric aquatic therapy is a growing field. Physical therapists (physios in certain countries), occupational therapists, and speech therapists may choose […]

Water Way Babies – Simple, Affordable and Amazing!

12 Feb, 2017 in Accessories / General Information / Gifts / Guest Posts / Reviews / Toys tagged Nancy Higgs / water way babies by Hannah Levi

hydrotherapy for cerebral palsy — Hydrotherapy (or Aqua Therapy as it is sometimes called) is an amazing type of water therapy that can considerably enhance the lives of children experiencing Hydranencephaly and/or Cerebral Palsy as well as many other similar conditions. In fact, Hydrotherapy for Cerebral Palsy is one of the most popular therapies that is […]

How Hydrotherapy For Cerebral Palsy Really Helps!

11 Jan, 2017 in General Information tagged aqua therapy / cerebral palsy / hydrotherapy by Hannah Levi

G-Tube Feeding — When Natan Shai’s doctor suggested G-Tube Feeding I was pretty much gobsmacked. It’s not that it never crossed my mind that one day he may never eat orally again, I’d seen plenty of my friends’ children in the GHF group who had G-tubes. I was just hoping that we would […]

G-Tube Feeding – Why We Never Looked Back!!

29 Dec, 2016 in General Information tagged Feeding Tube / G-Tube by Hannah Levi

the global hydranencephaly foundation — The Global Hydranencephaly Foundation was founded by the amazing Alicia Harper in 2013 (Mother to <a href="http://www Extra resources.hydranencephalyfoundation.org/tribute.html”>Brayden Alexander Harper). Instead of letting her sons diagnosis and attached prognosis defeat her and her family, she faced it head on and chose to defy the common misconceptions associated with Hydranencephaly. […]

What Is The Global Hydranencephaly Foundation?

25 Dec, 2016 in General Information tagged GHF / Global Hydranencephaly Foundation / hydranencephaly by Hannah Levi

what is the difference between hydrocephalus and hydranencephaly? — Understandably many people are not aware of the differences between Hydranencephaly and Hydrocephalus. To be honest with you, when we first got Natan Shai I didn’t know the difference either, especially because he was diagnosed as having Hydranencephaly AND Hydrocephalus – I just presumed they were almost the same thing. […]

What Is The Difference Between Hydranencephaly and Hydrocephalus?

24 Dec, 2016 in General Information tagged hydranencephaly / hydrocephalus / shunt by Hannah Levi

hydranencephaly images — O.K. so if you’re looking for Hydranencephaly images I can bet that you are either a doctor doing your research or you have probably just been told that your baby or a baby of a loved one has been diagnosed with this condition. You may even be a little apprehensive as […]

Hydranencephaly Images

14 Dec, 2016 in General Information by Hannah Levi

If you do a search on Google for ‘Hydranencephaly Prognosis’ the chances are you are going to get a rather dim and frightening response from most websites. That is because Hydranencephaly has not yet been studied enough by doctors who are all too quick to offer a very pessimistic opinion on this […]

Hydranencephaly Prognosis – What The Doctors Won’t Tell You!!

20 Nov, 2016 in General Information by Hannah Levi

natan shai — HYDRANENCEPHALY DEFINITION – WHAT IS IT? If you’re new to the word Hydranencephaly like I was in the beginning, it can be quite daunting to hear this word, to say the least, and forget about trying to pronounce it! But if your baby has been diagnosed with this condition then […]

Hydranencephaly Definition – What Is It?

14 Oct, 2015 in General Information by Hannah Levi

natanashai.com — THE HYDRANENCEPHALY INFANT AND WHAT TO EXPECT When your baby is first diagnosed as a Hydranencephaly infant it is obviously a huge shock. Not only to the parents but to the grandparents and immediate family as well. This diagnosis might be revealed whilst you are still pregnant or you might […]

The Hydranencephaly Infant – What Can I Expect?

9 Oct, 2015 in General Information by Hannah Levi

www.natanshai.com — In a nutshell, Hydranencephaly is a very unusual neurological condition whereby most of the cerebral hemispheres are missing and replaced by fluid instead. This is the condition that my son Natan Shai experiences and the reason why I made this website. I would like to share with you, my experiences […]

What Is Hydranencephaly?

9 Sep, 2015 in General Information tagged hydranencephaly / missing brain by Hannah Levi